Helen smiling for the camera. Hope4Helen!

Hope in Action

Our Mission

Helen's Pink Sky Foundation is committed to advocacy, research and care for those with Batten disease & CLN2. Through our platform, you can stay updated on Helen's journey, contribute to the cause, and be a part of our growing community dedicated to supporting affected families. Together we will beat this. Let's GO!

Meet the Team

Our team at Helen's Pink Sky Foundation is passionate about making a positive impact in the lives of those affected by Batten disease CLN2. Through dedication and hard work, we will bring hope and support to families in need.

Helen's Pink Sky Foundation Board

Helen's Mom

Stephanie Born

Stephanie is Helen's mom, and she has worked in cybersecurity for years - dedicated to Customer Success. As Helen's mom, she is an essential supporter of both her daughter and the Foundation, actively promoting awareness and providing community updates. With her passion for research and commitment to finding a cure for Helen, Stephanie is instrumental in driving fundraising efforts and awareness to support the vital research needed for Helen.

Helen's Dad

Dan Born

Dan is Helen's dad, and he has worked in the cybersecurity field for years. With a passion for people and networking and a commitment to making a difference for Helen, he has played a pivotal role in rallying doctors and researchers to support Helen and Helen's Pink Sky Foundation. Dan's dedication to finding the right people and research has strengthened the foundation's mission, and he continues to drive progress towards finding a better outcome for Helen.

Helen's Uncle

Nick Schneider

Nick is a dedicated CEO in the cybersecurity field and the proud uncle of Helen. He has led the way establishing Helen's Pink Sky Foundation and driving its mission forward. Nick's passion for finding a cure for Helen's disease fuels his commitment to making a meaningful impact through the Foundation. His support and guidance are invaluable as the board works together to create hope and change.

Helen's Grandpa

Mark Schneider

Mark has played a vital role in supporting his granddaughter Helen on her journey since day one. He is passionate about raising awareness for CLN2 through research and promoting rare disease awareness within the government, and he is determined to create a brighter future for Helen. His love and commitment to finding a cure for Helen shines through in everything he does.

Helen's Grandpa

Dave Born

Dave is Helen's loving grandfather and a seasoned finance professional with a wealth of experience managing financial operations. He plays a crucial role in the financial health of Helen's Pink Sky Foundation. With his expertise, Dave is instrumental in managing donations and guiding the Foundation financially towards its mission of finding a cure for Helen and funding CLN2 research.

Helen's Godfather

Tim Meyer

Tim is Helen's godfather and an influential person in Indycar racing. With his expertise in business development, he has played a vital role in raising awareness and fostering partnerships that enhance fundraising efforts for Helen's cause. Tim's determination and love make a significant impact in our fight for a brighter future for Helen.

Best Friend of Helen's Mom

Megan Jackson

Megan and Stephanie Born have been best friends since kindergarten. With a history supporting other foundations, Megan is an enthusiastic advocate for Helen and is dedicated to raising awareness for Helen's Pink Sky Foundation. Through her social media efforts, Megan shares valuable insights and inspires others to get involved in the cause. Megan is committed to making a difference in Helen's life and supporting the Born family through this journey.

Board

Scientific Advisors

Scientific Advisors COMING SOON!

Stay tuned!

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